Published Articles

PUBLICATIONS

Shaw JM, Shepherd HL, Durcinoska I, Butow PN, Liauw W, Goldstein D, Young JM. ‘It's all good on the surface: care coordination experiences of migrant cancer patients in Australia.Support Care Cancer.’ 2015 Dec 3

person in laboratory

Burmeister EA, OʼConnell DL, Beesley VL, Goldstein D, Gooden HM, Janda M, Jordan SJ, Merrett ND, Payne ME, Wyld D, Neale RE. ‘Pancreatic Cancer Patterns of Care Study Group. Describing Patterns of Care in Pancreatic Cancer: A Population-Based Study.Pancreas.’ 2015 Nov;44(8):1259-65

Stein A, Arnold D, Bridgewater J, Goldstein D, Jensen LH, Klümpen HJ, Lohse AW, Nashan B, Primrose J, Schrum S, Shannon J, Vettorazzi E, Wege H. ‘Adjuvant chemotherapy with gemcitabine and cisplatin compared to observation after curative intent resection of cholangiocarcinoma and muscle invasive gallbladder carcinoma (ACTICCA-1 trial) - a randomized, multidisciplinary, multinational phase III trial.BMC Cancer. 2015 Jul 31;15:564.

Beesley VL, Janda M, Goldstein D, Gooden H, Merrett ND, O'Connell DL, Rowlands IJ, Wyld D, Neale RE. ‘A tsunami of unmet needs: pancreatic and ampullary cancer patients' supportive care needs and use of community and allied health services.Psycho-oncology. 2015 Jun 29.

Sze M, Butow P, Bell M, Vaccaro L, Dong S, Eisenbruch M, Jefford M, Girgis A, King M, McGrane J, Ng W, Asghari R, Parente P, Liauw W, Goldstein D; Psycho-oncology Co-operative Research Group Culturally and Linguistically Diverse (CALD) TEAM. ‘Migrant health in cancer: outcome disparities and the determinant role of migrant-specific variables.Oncologist. 2015 May;20(5):523-31.

Murphy C, Sabesan S, Steer C, Yates P, Booms A, Jones V, Simpson A, Clarke K, Eek R, Ashley D, Goldstein D, Packer C, Tuthill F, Boyce A, Underhill C. ‘Oncology service initiatives and research in regional Australia.Aust J Rural Health. 2015 Feb;23(1):40-8.

Cavanagh BM, Wakefield CE, McLoone JK, Garvey G, Cohn RJ. Cancer survivorship services for indigenous peoples: where we stand, where to improve? A systematic review. J Cancer Surviv. 2015 Sep 7.

Green DM, Merchant TE, Billups CA, Stokes DC, Broniscer A, Bartels U, Chintagumpala M, Hassall TE, Gururangan S, McCowage GB, Heath JA, Cohn RJ, Fisher MJ, Srinivasan A, Robinson GW, Gajjar A. Pulmonary Function After Treatment for Embryonal Brain Tumors on SJMB03 That Included Craniospinal Irradiation. Int J Radiat Oncol Biol Phys. 2015 Sep 1;93(1):47-53.

Sansom-Daly UM, Bryant RA, Cohn RJ, Wakefield CE. Rumination and self-defining memories in the context of health concerns. Memory. 2015 Aug 14:1-10.

Naumann FL, Hunt M, Ali D, Wakefield CE, Moultrie K, Cohn RJ. Assessment of Fundamental Movement Skills in Childhood Cancer Patients. Pediatr Blood Cancer. 2015 Dec;62(12):2211-5.

Bogg TF, Shaw PJ, Cohn RJ, Wakefield CE, Hardy LL, Broderick C, Naumann F. Physical activity and screen-time of childhood haematopoietic stem cell transplant survivors. Acta Paediatr. 2015 Oct;104(10):e455-9.

Neville KA, Cohn RJ. Bone health in survivors of childhood cancer. Lancet Diabetes Endocrinol. 2015 Jul;3(7):496-7.

Wakefield CE, Sansom-Daly UM, McGill BC, McCarthy M, Girgis A, Grootenhuis M, Barton B, Patterson P, Osborn M, Lowe C, Anazodo A, Miles G, Cohn RJ. Online parent-targeted cognitive-behavioural therapy intervention to improve quality of life in families of young cancer survivors: study protocol for a randomised controlled trial. Trials. 2015 Apr 11;16:153.

Signorelli C, McLoone JK, Wakefield CE, Cohn RJ. Dental hygiene in childhood cancer survivors: the importance of tertiary long term follow-up care. Pediatr Blood Cancer. 2015 May;62(5):921.

Neville KA, Walker JL, Cohn RJ, Cowell CT, White CP. The prevalence of Vitamin D deficiency is higher in adult survivors of childhood cancer. Clin Endocrinol (Oxf). 2015 May;82(5):657-62.

Vedi A, Pennington V, O'Meara M, Stark K, Senner A, Hunstead P, Adnum K, Londall W, Maurice L, Wakefield C, Cohn RJ. Management of fever and neutropenia in children with cancer. Support Care Cancer. 2015 Jul;23(7):2079-87.

Evans NT, Wakefield CE, McLoone JK, Cohn RJ. Familial diagnostic experiences in paediatric oncology. Br J Cancer. 2015 Jan 6;112(1):20-3.

Cohen J, Wakefield CE, Tapsell LC, Walton K, Fleming CA, Cohn RJ. Exploring the views of parents regarding dietary habits of their young cancer-surviving children. Support Care Cancer. 2015 Feb;23(2):463-71.

Xu H, Robinson GW, Huang J, Lim JY, Zhang H, Bass JK, Broniscer A, Chintagumpala M, Bartels U, Gururangan S, Hassall T, Fisher M, Cohn R, Yamashita T, Teitz T, Zuo J, Onar-Thomas A, Gajjar A, Stewart CF, Yang JJ. Common variants in ACYP2 influence susceptibility to cisplatin-induced hearing loss. Nat Genet. 2015 Mar; 47(3): 263-6.

Fleming CAK, Cohen J, Murphy A, Wakefield CE, Cohn RJ, Naumann FL.(2015). Parent feeding interactions and practices during childhood cancer treatment. A qualitative investigation. Appetite 89:219-225 01 Jun 2015.

Fleming CAK, Cohen J, Murphy A, Wakefield CE, Cohn RJ, Naumann FL.(2015). Parent feeding interactions and practices during childhood cancer treatment. A qualitative investigation. Appetite 89:219-225 01 Jun 2015.

Bogg TF, Broderick C, Shaw P, Cohn R, Naumann FL (2015). Feasibility of an inpatient exercise intervention for children undergoing hematopoietic stem cell transplant. Pediatr Transplant 2015 Dec;19 (8):925-31.

McCarroll J, Teo J, Boyer C, Goldstein D, Kavallaris M, Phillips PA. ‘Potential applications of nanotechnology for the diagnosis and treatment of pancreatic cancer.’ Front Physiol. 2014;5:2

Valle JW, Palmer D, Jackson R, Cox T, Neoptolemos JP, Ghaneh P, Rawcliffe CL, Bassi C, Stocken DD, Cunningham D, O'Reilly D, Goldstein D, Robinson BA, Karapetis C, Scarfe A, Lacaine F, Sand J, Izbicki JR, Mayerle J, Dervenis C, Oláh A, Butturini G, et al. ‘Optimal duration and timing of adjuvant chemotherapy after definitive surgery for ductal adenocarcinoma of the pancreas: ongoing lessons from the ESPAC-3 study.’ J Clin Oncol. 2014 Feb 20;32(6):504-12

Greenhalf W, Ghaneh P, Neoptolemos JP, Palmer DH, Cox TF, Lamb RF, Garner E, Campbell F, Mackey JR, Costello E, Moore MJ, Valle JW, McDonald AC, Carter R, Tebbutt NC, Goldstein D, Shannon J, Dervenis C, Glimelius B, Deakin M, Charnley RM, Lacaine F, et al. ‘Pancreatic cancer hENT1 expression and survival from gemcitabine in patients from the ESPAC-3 trial.’ J Natl Cancer Inst. 2014 Jan;106(1)

Kumar RK, Webber K, Gilbert C, Pryor W. ‘An online tool to help doctors learn about the rational use of diagnostic investigations.’ Focus on Health Professional Education, 2014, 15(3):95-98

McGrane JA, Butow PN, Sze M, Eisenbruch M, Goldstein D, King MT. ‘Assessing the invariance of a culturally competent multi-lingual unmet needs survey for immigrant and Australian-born cancer patients: a Rasch analysis.’ Qual Life Res. 2014 Dec;23(10):2819-30

Wang X, Goldstein D, Crowe PJ, Yang JL. ‘Impact of STAT3 inhibition on survival of osteosarcoma cell lines.’ Anticancer Res. 2014 Nov;34(11):6537-45

Hillman RJ, Garland SM, Gunathilake MP, Stevens M, Kumaradevan N, Lemech C, Ward RL, Meagher A, McHugh L, Jin F, Carroll S, Goldstein D, Grulich AE, Tabrizi SN. ‘Human papillomavirus (HPV) genotypes in an Australian sample of anal cancers.’ Int J Cancer. 2014 Aug 15;135(4):996-1001

Goldstein D, Bell ML, Butow P, Sze M, Vaccaro L, Dong S, Liauw W, Hui R, Tattersall M, Ng W, Asghari R, Steer C, Vardy J, Parente P, Harris M, Karanth NV, King M, Girgis A, Eisenbruch M, Jefford M. ‘Immigrants' perceptions of the quality of their cancer care: an Australian comparative study, identifying potentially modifiable factors.’ Ann Oncol. 2014 Aug;25(8):1643-9

Patel MB, Pothula SP, Xu Z, Lee AK, Goldstein D, Pirola RC, Apte MV, Wilson JS. ‘The role of the hepatocyte growth factor/c-MET pathway in pancreatic stellate cell-endothelial cell interactions: antiangiogenic implications in pancreatic cancer.’ Carcinogenesis. 2014 Aug;35(8):1891-900

Bennett BK, Goldstein D, Chen M, Davenport TA, Vollmer-Conna U, Scott EM, Hickie IB, Lloyd AR. ‘Characterization of fatigue states in medicine and psychiatry by structured interview.’ Psychosom Med. 2014 Jun;76(5):379-88.

Movsas B, Hunt D, Watkins-Bruner D, Lee WR, Tharpe H, Goldstein D, Moore J, Dayes IS, Parise S, Sandler H. ‘Can electronic web-based technology improve quality of life data collection? Analysis of Radiation Therapy Oncology Group 0828.’ Pract Radiat Oncol. 2014 May-Jun;4(3):187-91

Wong KM, Qiu X, Cheng D, Azad AK, Habbous S, Palepu P, Mirshams M, Patel D, Chen Z, Roberts H, Knox J, Marquez S, Wong R, Darling G, Waldron J, Goldstein D, Leighl N, Shepherd FA, Tsao M, Der S, Reisman D, Liu G. ‘Two BRM promoter insertion polymorphisms increase the risk of early-stage upper aerodigestive tract cancers.’ Cancer Med. 2014 Apr;3(2):426-33

Valle JW, Palmer D, Jackson R, Cox T, Neoptolemos JP, Ghaneh P, Rawcliffe CL, Bassi C, Stocken DD, Cunningham D, O'Reilly D, Goldstein D, Robinson BA, Karapetis C, Scarfe A, Lacaine F, Sand J, Izbicki JR, Mayerle J, Dervenis C, Oláh A, Butturini G, Lind PA, Middleton MR, Anthoney A, Sumpter K, Carter R, Büchler MW. ‘Optimal duration and timing of adjuvant chemotherapy after definitive surgery for ductal adenocarcinoma of the pancreas: ongoing lessons from the ESPAC-3 study.’ J Clin Oncol. 2014 Feb 20;32(6):504-12

Von Hoff DD, Goldstein D, Renschler MF. ‘Albumin-bound paclitaxel plus gemcitabine in pancreatic cancer.’ N Engl J Med. 2014 Jan 30;370(5):479-80

McCarroll JA, Naim S, Sharbeen G, Russia N, Lee J, Kavallaris M, Goldstein D, Phillips PA. ‘Role of pancreatic stellate cells in chemoresistance in pancreatic cancer.’ Front Physiol. 2014 Apr 9;5:141

McCarroll J, Teo J, Boyer C, Goldstein D, Kavallaris M, Phillips PA. ‘Potential applications of nanotechnology for the diagnosis and treatment of pancreatic cancer.’ Front Physiol. 2014 Jan 24;5:2

Greenhalf W, Ghaneh P, Neoptolemos JP, Palmer DH, Cox TF, Lamb RF, Garner E, Campbell F, Mackey JR, Costello E, Moore MJ, Valle JW, McDonald AC, Carter R, Tebbutt NC, Goldstein D, Shannon J, Dervenis C, Glimelius B, Deakin M, Charnley RM, Lacaine F, Scarfe AG, Middleton MR, Anthoney A, Halloran CM, Mayerle J, Oláh A, Jackson R, Rawcliffe CL, Scarpa A, Bassi C, Büchler MW; European Study Group for Pancreatic Cancer. ‘Pancreatic cancer hENT1 expression and survival from gemcitabine in patients from the ESPAC-3 trial.’ J Natl Cancer Inst. 2014 Jan;106(1)

Wakefield CE, Drew D, Ellis SJ, Doolan EL, McLoone JK, Cohn RJ. ‘Grandparents of children with cancer: a controlled study of distress, support, and barriers to care.’ Psychooncology. 2014 Aug;23(8):855-61

Cheung LL, Wakefield CE, Ellis SJ, Mandalis A, Frow E, Cohn RJ. ‘Neuropsychology reports for childhood brain tumor survivors: implementation of recommendations at home and school.’ Pediatr Blood Cancer. 2014 Jun;61(6):1080-7

Vedi A, Neville K, Johnston K, Saravanja D, Cohn RJ. ‘Slipped capital femoral epiphyses after total body irradiation.’ Pediatr Blood Cancer. 2014 Jun;61(6):1140

Cohen J, Laing DG, Wilkes FJ, Chan A, Gabriel M, Cohn RJ. ‘Taste and smell dysfunction in childhood cancer survivors.’ Appetite. 2014 Apr;75:135-40

Bass JK, Huang J, Onar-Thomas A, Chang KW, Bhagat SP, Chintagumpala M, Bartels U, Gururangan S, Hassall T, Heath JA, McCowage G, Cohn RJ, Fisher MJ, Robinson G, Broniscer A, Gajjar A, Gurney JG. ‘Concordance between the chang and the International Society of Pediatric Oncology (SIOP) ototoxicity grading scales in patients treated with cisplatin for medulloblastoma.’ Pediatr Blood Cancer. 2014 Apr;61(4):601-5

Wakefield CE, Drew D, Ellis SJ, Doolan EL, McLoone JK, Cohn RJ. ‘'What they're not telling you': a new scale to measure grandparents' information needs when their grandchild has cancer.’ Patient Educ Couns. 2014 Mar;94(3):351-5

Patterson P, McDonald FE, Butow P, White KJ, Costa DS, Millar B, Bell ML, Wakefield CE, Cohn RJ. ‘Psychometric evaluation of the Sibling Cancer Needs Instrument (SCNI): an instrument to assess the psychosocial unmet needs of young people who are siblings of cancer patients.’ Support Care Cancer. 2014 Mar;22(3):653-65

Gottardo NG, Hansford JR, McGlade JP, Alvaro F, Ashley DM, Bailey S, Baker DL, Bourdeaut F, Cho YJ, Clay M, Clifford SC, Cohn RJ, Cole CH, Dallas PB, Downie P, Doz F, Ellison DW, Endersby R, Fisher PG, Hassall T, Heath JA, Hii HL, Jones DT, Junckerstorff R, Kellie S, Kool M, Kotecha RS, Lichter P, Laughton SJ, Lee S, McCowage G, Northcott PA, Olson JM, Packer RJ, Pfister SM, Pietsch T, Pizer B, Pomeroy SL, Remke M, Robinson GW, Rutkowski S, Schoep T, Shelat AA, Stewart CF, Sullivan M, Taylor MD, Wainwright B, Walwyn T, Weiss WA, Williamson D, Gajjar A. ‘Medulloblastoma Down Under 2013: a report from the third annual meeting of the International Medulloblastoma Working Group.’ Acta Neuropathol. 2014 Feb;127(2):189-201

Sansom-Daly UM, Bryant RA, Cohn RJ, Wakefield CE. ‘Imagining the future in health anxiety: the impact of rumination on the specificity of illness-related memory and future thinking.’ Anxiety Stress Coping. 2014;27(5):587-600

Wakefield CE, McLoone JK, Evans NT, Ellis SJ, Cohn RJ. ‘It's more than dollars and cents: the impact of childhood cancer on parents' occupational and financial health.’ J Psychosoc Oncol. 2014;32(5):602-21

Bennett BK, Goldstein D, Chen M, Davenport TA, Vollmer-Conna U, Scott EM, Hickie IB, Lloyd AR. ‘Characterization of fatigue states in medicine and psychiatry by structured interview’, Psychosomatic Medicine 2014 Jun;76(5):379-88

McGrane JA, Butow PN, Sze M, Eisenbruch M, Goldstein D, King MT. ‘Assessing the invariance of a culturally competent multi-lingual unmet needs survey for immigrant and Australian-born cancer patients: a Rasch analysis’, Qual Life Res. 2014 Dec;23(10):2819-30          

PRESENTATIONS

Goldstein D,‘Working Together: Reducing the Impact of Cancer for Patients and Families – Cancer treatment related fatigue’. The Third Victorian Psycho-Oncology Research Conference, October 16, 2015 Melbourne, Australia – Invited presentation

Goldstein D, ‘Exercise and Cancer’. Cancer Grand RoundsPrince of Wales Hospital, 26 November, 2015 Sydney, Australia – Invited presentation

Webber K. Current Care and Needs of Adult Cancer Survivors

Invited keynote speaker, launch of the Western Australia Cancer Survivorship Collaborative, Perth November 2014

Webber K. The Challenges of Cancer Survivorship: Increasing Survival, Improving Lives

Invited speaker. Western Australia Cancer Education meeting series Perth November 2014

Webber K, Sommeijer D, Mileshkin L, Friedlander M. OvQuest: Living after the diagnosis and treatment of ovarian cancer. Preliminary findings from an internet-based survey. International Journal Of Gynecological Cancer 24 (9), 252-252

Poster presentation at International Gynecological Cancer Society Meeting, Melbourne November 2014

Webber K, Bennett BK, Goldstein D, Lloyd AR. Genetic associations of fatigue and other symptom domains after breast cancer treatment: Results from a prospective cohort study. J Clin Oncol 32:5s, 2014 (suppl; abstr 9537)

Poster Highlights presentation at American Society of Clinical Oncology Annual Meeting, Chicago USA, June 2014

Webber K, Sommeijer D, Mileshkin L, Friedlander M. ‘OvQuest: Living after the diagnosis and treatment of ovarian cancer. Preliminary findings from an internet-based survey’.  Oral presentation at Australia New Zealand Gynaecological Oncology Group and Australian Society of Gynaecological Oncology (ANZGOG/ASGO) combined meeting, Canberra March 2014 - Prize for best oral abstract

Goldstein D, Zilliacus E, et al. ‘Working with patients from culturally and linguistically diverse backgrounds. Perspectives of oncology health professionals’ COSA 2014

Sandler CX, et al. ‘Barriers to recruitment for a post cancer fatigue intervention’, COSA 2014

Bennett BK, et al. ‘What do patients really mean when they complain of fatigue after treatment? Development of a clinical interview to facilitate reliable identification of post cancer fatigue’. Cancer Institute NSW Innovations Conference October 17th 2014

Bennett BK, Webber K, Lloyd AR, Goldstein D. ‘Resilience following breast cancer treatment - findings from a prospective study’. Oral presentation - Flinders Centre For Innovation in Cancer Survivorship Conference, Adelaide Australia February 6 -7th 2015

Sandler CX, Hamilton B, Horsfield S L, Bennett BK, Lloyd AR. ‘Development of an optimised, multi-disciplinary intervention for chronic fatigue states’. World Confederation of Physical Therapy Congress Singapore 1-4 May 2015

Sandler CX, Goldstein D, Horsfield S, Bennett BK, Friedlander M, Bastick PA, Lewis CR, Segelov E, Boyle FM, Chin MT, Barry BK, Webber K, Lloyd AR. ‘TOPS Investigators TOPS: A randomised controlled trial of a multidisciplinary intervention for postcancer fatigue’ 2015 ASCO Annual Meeting Chicago USA J Clin Oncol 33, 2015 (suppl; abstr 9571)

Bennett BK. ‘Survival after cancer’. Cancer & Oncology Nursing Conference May 11,12 2015 Sydney, Australia – Invited presentation

Bennett BK. ‘Cancer as a chronic disease’. Cancer & Oncology Nursing Conference May 11,12 2015 Sydney, Australia – Invited presentation

 

Testimonials

"At first a felt a bit funny about talking to a lady about my problems after my cancer treatment, but my doctor is really nice and really understanding.  Plus she is an oncologist so she understands all the medical stuff that goes along with cancer treatment so I didn't have to explain things to her the way I did to my GP.  I felt like she really understood where I was coming from and gave me some good strategies to help with my issues.  And she wrote a care plan and sent a copy to my GP as well, so hopefully now when I go to see him he will feel like he is better able to treat me."

Anthony, prostate cancer survivor
"At 26 I was diagnosed with a rare form of ovarian cancer... having survived this (thanks to a great medical team), I ‘floundered’ for many years with the resulting impact of early menopause, fertility issues and general fatigue. Even worse, I felt extreme guilt that I should be able to overcome these issues easily as I survived when others didn’t, I really didn’t have the right to ever complain again. This impacted directly on my confidence, self esteem and identity. ……I am now 46, have 2 children, a partner, a career and a good life.  However, the struggle I had undergone, in pretty much isolation, has been hard.  Even friends and family who were great during treatment felt I should ‘just move on’.  The establishment of this centre is a great comfort as it shows there is now a greater awareness of cancer survivor issues to hopefully ensure better long term support for people who have had cancer."

Melinda, ovarian cancer survivor 
"I am aware of the National Centre for Cancer Survivorship and support them in their mission to find new and better ways to care for cancer survivors through research. With the high number of Australians now surviving cancer or living with ongoing cancer for many years, we need to better understand the health issues confronting this group and develop interventions to address their unique and often complex needs. As someone who has worked in the medical oncology setting for 20 years, I believe the National Centre for Cancer Survivorship is leading the way in this work."

Dr Elizabeth Hovey, MB BS FRACP MSC - Medical Oncologist, SESIAHS & UNSW, Prince of Wales Hospital
"As Director of the Kids Cancer Centre, Sydney Children’s Hospital and Professor of Paediatrics at the University of NSW, I have watched the development of the National Centre for Cancer Survivorship over the last few years. I strongly support the opportunity the Centre provides to bring together research focusing on survivors of childhood cancer with that focusing on adult survivors. In both areas it is clear that there are many unresolved challenges in understanding the health care needs of cancer survivors, and developing best practice interventions for both prevention and treatment of those problems. I believe wholeheartedly that the work that being undertaken through the Centre will benefit both kids and adult survivors people for many years to come."

Professor Glenn Marshall, AM, MB, BS, FRACP, MD Paediatric Haematologist & Oncologist, Director, Kids Cancer Centre, Sydney Children’s Hospital