Welcome

Cancer is the major cause of ongoing illness in Australia. While the incidence of cancer in Australia is increasing, cancer survival rates are improving which means many more people are living as cancer survivors. 

 

family group hug

The growing number of survivors highlights the need to address cancer survivors’ unique physical and psychosocial needs, and to develop and provide coordinated care that helps to prevent or reduce the late effects of cancer that adversely affect survivors’ health and quality of life.

For many survivors life after cancer is as good as — sometimes even better than — it was before. But for many others there are challenges.

Unexpected physical and psychological effects of the cancer and its treatment can affect a survivor’s ability to work, care for their family, be active, and to do the other ‘normal’ things in life before cancer. 

Led by a group of leading cancer specialists and researchers, the National Centre for Cancer Survivorship (NCCS) is Australia’s first comprehensive cancer survivors research centre dedicated to better understanding and addressing the physical, emotional and practical challenges faced by cancer survivors. 

 

Our Vision: To become a leading centre for research into cancer survivorship internationally and thereby guide evidence-based clinical practice for the care of cancer survivors in Australia and worldwide.

Our Mission: To find new and better ways to care for cancer survivors through research.

Our Values: Best practice in the care of cancer survivors should be informed by cutting-edge clinical research. At the heart of our work, a set of core values guides every aspect of what we do.

  • We believe in evidence-based medicine: our research seeks to understand the needs of cancer survivors and to develop prevention and treatment strategies through clinical research.
  • We believe in innovation: our clinical research utilises leading methods and creative study designs to facilitate discovery of new knowledge.
  • We believe in excellence: we seek to conduct research that is highly regarded by peers, clinicians and patients in order to inform the best approaches to high-quality care for cancer survivors.
  • We believe in collaboration: our research is strengthened through partnerships with other organisations, and our findings are disseminated widely to inform clinical practice nationally and internationally.

Testimonials

"At first a felt a bit funny about talking to a lady about my problems after my cancer treatment, but my doctor is really nice and really understanding.  Plus she is an oncologist so she understands all the medical stuff that goes along with cancer treatment so I didn't have to explain things to her the way I did to my GP.  I felt like she really understood where I was coming from and gave me some good strategies to help with my issues.  And she wrote a care plan and sent a copy to my GP as well, so hopefully now when I go to see him he will feel like he is better able to treat me."

Anthony, prostate cancer survivor
"At 26 I was diagnosed with a rare form of ovarian cancer... having survived this (thanks to a great medical team), I ‘floundered’ for many years with the resulting impact of early menopause, fertility issues and general fatigue. Even worse, I felt extreme guilt that I should be able to overcome these issues easily as I survived when others didn’t, I really didn’t have the right to ever complain again. This impacted directly on my confidence, self esteem and identity. ……I am now 46, have 2 children, a partner, a career and a good life.  However, the struggle I had undergone, in pretty much isolation, has been hard.  Even friends and family who were great during treatment felt I should ‘just move on’.  The establishment of this centre is a great comfort as it shows there is now a greater awareness of cancer survivor issues to hopefully ensure better long term support for people who have had cancer."

Melinda, ovarian cancer survivor 
"I am aware of the National Centre for Cancer Survivorship and support them in their mission to find new and better ways to care for cancer survivors through research. With the high number of Australians now surviving cancer or living with ongoing cancer for many years, we need to better understand the health issues confronting this group and develop interventions to address their unique and often complex needs. As someone who has worked in the medical oncology setting for 20 years, I believe the National Centre for Cancer Survivorship is leading the way in this work."

Dr Elizabeth Hovey, MB BS FRACP MSC - Medical Oncologist, SESIAHS & UNSW, Prince of Wales Hospital
"As Director of the Kids Cancer Centre, Sydney Children’s Hospital and Professor of Paediatrics at the University of NSW, I have watched the development of the National Centre for Cancer Survivorship over the last few years. I strongly support the opportunity the Centre provides to bring together research focusing on survivors of childhood cancer with that focusing on adult survivors. In both areas it is clear that there are many unresolved challenges in understanding the health care needs of cancer survivors, and developing best practice interventions for both prevention and treatment of those problems. I believe wholeheartedly that the work that being undertaken through the Centre will benefit both kids and adult survivors people for many years to come."

Professor Glenn Marshall, AM, MB, BS, FRACP, MD Paediatric Haematologist & Oncologist, Director, Kids Cancer Centre, Sydney Children’s Hospital